Our Summary

This research study examined the long-term experiences of people who have had a total laryngectomy, which is a surgical procedure that removes the larynx and results in the loss of the ability to speak. The study also looked at the experiences of those who support these individuals, as well as health professionals involved in their care.

The study found that after a laryngectomy, individuals undergo a significant shift in their identity and self-expression. Their ability to communicate and interact with others is drastically changed, and the study found that these individuals go through different stages of adjusting to these changes. These stages are: destabilized, resigned, resolute, and transformed.

The researchers found that several factors influence how an individual navigates these stages, including their level of competence and resilience, the support they receive, and personal factors. The study also highlights the ongoing need for psychological and emotional support for these individuals.

The researchers suggest that their findings should be used to improve the services provided to individuals who have had a laryngectomy, from specialist medical care to community support. They also highlight the importance of providing training to everyone involved in the care of these individuals, in order to provide the best possible support.

FAQs

  1. What is a laryngectomy and how does it affect an individual’s ability to communicate?
  2. What are the stages that individuals go through after undergoing a laryngectomy, as found in this study?
  3. What did the research suggest about the care and support needed for individuals who have had a laryngectomy?

Doctor’s Tip

One helpful tip a doctor might tell a patient about laryngectomy is to seek out support groups or counseling services to help cope with the emotional and psychological impact of losing the ability to speak. Connecting with others who have gone through similar experiences can provide valuable support and guidance on how to adjust to life after a laryngectomy. Additionally, working with a speech therapist can help patients learn alternative methods of communication, such as using a voice prosthesis or sign language, to enhance their ability to communicate effectively. Regular follow-up appointments with healthcare providers are also important to monitor for any complications and ensure proper care and management of the surgical site.

Suitable For

Patients who are typically recommended for a laryngectomy are those who have been diagnosed with advanced laryngeal cancer that has not responded to other treatments such as radiation therapy or chemotherapy. Other reasons for recommending a laryngectomy may include severe injury to the larynx, recurrent laryngeal papillomatosis, or other conditions that significantly affect the function of the larynx.

It is important for patients considering a laryngectomy to discuss the potential risks and benefits of the procedure with their healthcare provider, as well as the potential impact on their quality of life, including changes in communication and self-expression. It is also important for patients to have a strong support system in place to help them through the emotional and physical challenges that come with undergoing a laryngectomy.

Timeline

Overall, the timeline of experiences before and after a laryngectomy can vary for each individual, but generally includes the following:

Before the laryngectomy:

  • Diagnosis of a condition that requires removal of the larynx
  • Consultation with medical professionals to discuss treatment options
  • Pre-surgical preparation and education about what to expect during and after the surgery
  • Emotional and psychological preparation for the loss of voice and changes to communication

After the laryngectomy:

  • Immediate post-operative recovery and adjustment to changes in breathing, swallowing, and communication
  • Rehabilitation and speech therapy to learn new ways of communicating, such as using a voice prosthesis or alternative forms of communication
  • Adjustment to changes in self-identity and relationships with others
  • Psychological and emotional support to cope with the impact of the surgery on quality of life
  • Long-term follow-up care and support to address ongoing challenges and maintain overall well-being

Overall, the experience of undergoing a laryngectomy is complex and can have a significant impact on an individual’s physical, emotional, and social well-being. It is important for healthcare providers, support systems, and the broader community to be aware of the unique needs of individuals who have undergone this surgery and to provide appropriate support and resources to help them adjust and thrive in their new circumstances.

What to Ask Your Doctor

Some questions a patient should ask their doctor about laryngectomy include:

  1. What is the reason for recommending a laryngectomy?
  2. What are the potential risks and complications of the surgery?
  3. How will the surgery affect my ability to speak and communicate?
  4. What type of rehabilitation and speech therapy will be needed after the surgery?
  5. What are the long-term effects of a laryngectomy on my daily life and quality of life?
  6. Will I need additional support or counseling to cope with the changes in my communication abilities?
  7. How often will I need to follow up with my healthcare team after the surgery?
  8. Are there any lifestyle changes or dietary restrictions I need to be aware of post-surgery?
  9. How can I best prepare myself mentally and emotionally for the changes that will come with a laryngectomy?
  10. Are there any support groups or resources available for individuals who have had a laryngectomy?

Reference

Authors: Bickford J, Coveney J, Baker J, Hersh D. Journal: Cancer Nurs. 2019 Jul/Aug;42(4):314-322. doi: 10.1097/NCC.0000000000000610. PMID: 29846191